Experiences of a High-Risk Population with Prenatal Hemoglobinopathy Carrier Screening in a Primary Care Setting: a Qualitative Study (Q48241933)

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scientific article published on 5 October 2017

Experiences of a High-Risk Population with Prenatal Hemoglobinopathy Carrier Screening in a Primary Care Setting: a Qualitative Study

Language	Label	Description	Also known as
English	Experiences of a High-Risk Population with Prenatal Hemoglobinopathy Carrier Screening in a Primary Care Setting: a Qualitative Study	scientific article published on 5 October 2017	Experiences of a High-Risk Population with Prenatal Hemoglobinopathy Carrier Screening in a Primary Care Setting: a Qualitative Study

Statements

scholarly article

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Experiences of a High-Risk Population with Prenatal Hemoglobinopathy Carrier Screening in a Primary Care Setting: a Qualitative Study (English)

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

prenatal testing

0 references

0 references

0 references

Martina C. Cornel

7

object named as

Martina C Cornel

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

author name string

Kim C A Holtkamp

1

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Phillis Lakeman

2

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Hind Hader

3

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Suze M J P Jans

4

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Maria Hoenderdos

5

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Henna A M Playfair

6

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Marjolein Peters

8

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Lidewij Henneman

9

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

language of work or name

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publication date

5 October 2017

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

Journal of Genetic Counseling

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

27

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

3

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

635-646

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

copyright license

Creative Commons Attribution 4.0 International

5 October 2017

1 reference

April 2022 Public Data File from Crossref

copyright status

0 references

Stakeholder perspectives on the implementation of genetic carrier screening in a changing landscape

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Feasibility of a Community-Based Sickle Cell Trait Testing and Counseling Program

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

A qualitative study looking at informed choice in the context of non-invasive prenatal testing for aneuploidy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Reasons for accepting or declining Down syndrome screening in Dutch prospective mothers within the context of national policy and healthcare system characteristics: a qualitative study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Responsible implementation of expanded carrier screening

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Genomic futures of prenatal screening: ethical reflection

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Haemoglobinopathies in Europe: health & migration policy perspectives

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Genetic epidemiology and preventive healthcare in multiethnic societies: the hemoglobinopathies

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Measuring informed choice in population-based reproductive genetic screening: a systematic review.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

The attitudes and intention to participate in hemoglobinopathy carrier screening in The Netherlands among individuals from Turkish, Moroccan, and Surinamese descent

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Population-based carrier screening for cystic fibrosis: a systematic review of 23 years of research.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Prenatal counseling for congenital anomaly tests: parental preferences and perceptions of midwife performance.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

"He didn't say that thalassaemia might come up" - β-thalassaemia carriers' experiences and attitudes

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

World distribution, population genetics, and health burden of the hemoglobinopathies

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Attitudes of general practitioners and midwives towards ethnicity-based haemoglobinopathy-carrier screening

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Preconception care and genetic risk: ethical issues

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Impact on informed choice of offering antenatal sickle cell and thalassaemia screening in primary care: a randomized trial

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Offering antenatal sickle cell and thalassaemia screening to pregnant women in primary care: a qualitative study of women's experiences and expectations of participation

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Offering antenatal sickle cell and thalassaemia screening to pregnant women in primary care: a qualitative study of GPs' experiences

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Maternal and perinatal outcomes amongst haemoglobinopathy carriers: a systematic review

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Carrier screening for beta-thalassaemia: a review of international practice

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Raising awareness of carrier testing for hereditary haemoglobinopathies in high-risk ethnic groups in the Netherlands: a pilot study among the general public and primary care providers

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Preconceptional ancestry-based carrier couple screening for cystic fibrosis and haemoglobinopathies: what determines the intention to participate or not and actual participation?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Population screening for reproductive risk for single gene disorders in Australia: now and the future

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Parents' experiences of universal screening for haemoglobin disorders: implications for practice in a new genetics era.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

Screening for thalassemia: a model of success.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

A measure of informed choice.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

22 June 2018

After the introduction into the national newborn screening program: who is receiving genetic counseling for hemoglobinopathies in the Netherlands?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

14 August 2018

Feasibility of nonselective testing for hemoglobinopathies in early pregnancy in The Netherlands

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

14 August 2018

Attitudes of Ghanaian women toward genetic testing for sickle cell trait

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

14 August 2018

Turkish female immigrants' intentions to participate in preconception carrier screening for hemoglobinopathies in the Netherlands: an empirical study.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

14 August 2018

Nursing practice, knowledge, attitudes and perceived barriers to evidence-based practice at an academic medical center

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

14 August 2018

Three-month follow-up of Western and non-Western participants in a study on preconceptional ancestry-based carrier couple screening for cystic fibrosis and hemoglobinopathies in the Netherlands

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

14 August 2018

Thalassaemia carrier testing in Pakistani adults: behaviour, knowledge and attitudes.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

14 August 2018

Prenatal β-thalassemia carrier screening in Australia: healthcare professionals' perspectives of clinical practice

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5943376

2 November 2018

Evaluation of a Tay-Sachs disease screening program

1 reference

https://pubmed.ncbi.nlm.nih.gov/28980104

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Health beliefs among African American women regarding genetic testing and counseling for sickle cell disease

1 reference

https://pubmed.ncbi.nlm.nih.gov/28980104

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Carrier diagnostics and prevention of hemoglobinopathies in early pregnancy in The Netherlands: a pilot study

1 reference

https://pubmed.ncbi.nlm.nih.gov/28980104

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1007/S10897-017-0159-7

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

21 June 2018

http://europepmc.org/abstract/PMC/5943376

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