"He didn't say that thalassaemia might come up" - β-thalassaemia carriers' experiences and attitudes (Q30540143)

16 August 2017

"He didn't say that thalassaemia might come up" - β-thalassaemia carriers' experiences and attitudes (English)

1 reference

16 August 2017

Martin B Delatycki

1 reference

16 August 2017

Nicole E Cousens

1 reference

16 August 2017

Clara L Gaff

series ordinal

1 reference

16 August 2017

Sylvia A Metcalfe

series ordinal

1 reference

16 August 2017

13 January 2013

1 reference

Journal of Community Genetics

16 August 2017

1 reference

16 August 2017

1 reference

16 August 2017

1 reference

16 August 2017

223-232

1 reference

A holistic approach to education programs in thalassemia for a multi-ethnic population: consideration of perspectives, attitudes, and perceived needs

16 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Offering antenatal sickle cell and thalassaemia screening to pregnant women in primary care: a qualitative study of women's experiences and expectations of participation

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Carrier screening for beta-thalassaemia: a review of international practice

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Impact of internet use on health-related behaviors and the patient-physician relationship: a survey-based study and review

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Carrier screening for thalassemia and hemoglobinopathies in Canada

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Population screening for reproductive risk for single gene disorders in Australia: now and the future

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Global epidemiology of haemoglobin disorders and derived service indicators

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Revisiting Wilson and Jungner in the genomic age: a review of screening criteria over the past 40 years

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

The qualitative content analysis process

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Parents' experiences of universal screening for haemoglobin disorders: implications for practice in a new genetics era.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Genetics and blood--haemoglobinopathies and clotting disorders

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

The thalassaemia syndromes

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

ACOG Practice Bulletin No. 78: hemoglobinopathies in pregnancy

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Diagnosis of the haemoglobinopathies

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Screening and counseling for thalassemia

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Three approaches to qualitative content analysis

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Designing effective written health education materials: considerations for health professionals

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Doctor-patient communication: a review of the literature

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

How effective are your patient education materials? Guidelines for developing and evaluating written educational materials

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Antenatal thalassaemia carrier testing: women's perceptions of "information" and "consent".

20 June 2018

1 reference

Crossref

https://api.crossref.org/works/10.1007%2FS12687-012-0136-7

Genetic screening and haemoglobinopathies: ethics, politics and practice

21 January 2018

1 reference

Crossref

https://api.crossref.org/works/10.1007%2FS12687-012-0136-7

Proposed international guidelines on ethical issues in medical genetics and genetic services (part I).

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3666831

Evaluation of a Tay-Sachs disease screening program

26 November 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/23315178

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Population-based carrier screening for cystic fibrosis in Victoria: the first three years experience

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/23315178

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Strategies for effective patient education material design

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/23315178

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1007/S12687-012-0136-7

1 reference

Dimensions Publication ID

16 August 2017

0 references

1 reference

16 August 2017

PubMed publication ID

23315178

1 reference