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Managing public health care policy: Who's being forgotten?

Author

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  • Brunton, Margaret
  • Jordan, Claire
  • Fouche, Christa
Abstract
The purpose of this paper is to explore the lived experience and perceptions of a sample of caregivers who are providing informal care 24Â h per day, 7 days per week for those with Alzheimer's disease in New Zealand. A mixed-method research design was used to collect and analyse the data. Semi-structured interviews with five caregivers and the completion of a questionnaire survey by 64 full-time caregivers provided insight into the significant burden carried by voluntary caregivers. However, alongside their experience of negative effects on their mental and psychological health, work and financial status, new perspectives of valued self-development and enhanced support networks in their caregiving role emerged. Despite this exploratory project being limited to a small sample of caregivers, the evidence suggests that they employ coping mechanisms which need to be recognised and supported with adequate and equitable resource allocation, if policy managers desire the current level of dependence on informal caregiving for those with Alzheimer's in this country to be sustained.

Suggested Citation

  • Brunton, Margaret & Jordan, Claire & Fouche, Christa, 2008. "Managing public health care policy: Who's being forgotten?," Health Policy, Elsevier, vol. 88(2-3), pages 348-358, December.
    • Handle: RePEc:eee:hepoli:v:88:y:2008:i:2-3:p:348-358
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    References listed on IDEAS

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    1. Milewa, Timothy, 2008. "Representation and legitimacy in health policy formulation at a national level: Perspectives from a study of health technology eligibility procedures in the United Kingdom," Health Policy, Elsevier, vol. 85(3), pages 356-362, March.
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    3. Wimo, Anders & von Strauss, Eva & Nordberg, Gunilla & Sassi, Franco & Johansson, Lennarth, 2002. "Time spent on informal and formal care giving for persons with dementia in Sweden," Health Policy, Elsevier, vol. 61(3), pages 255-268, September.
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    1. Flaminia Reale & Federica Segato & Daniela Tartaglini & Cristina Masella, 2020. "Action Research as a Method to Find Solutions for the Burden of Caregiving at Hospital Discharge," Systemic Practice and Action Research, Springer, vol. 33(2), pages 167-185, April.

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