Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences (Q30539740)

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Language	Label	Description	Also known as
English	Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences	scientific article

Statements

scholarly article

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences (English)

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

1 reference

based on heuristic

inferred from title

object named as

John Kirwan

5

0 references

1

object named as

Maarten de Wit

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

author name string

Tineke Abma

2

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

Marije Koelewijn-van Loon

3

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

Sarah Collins

4

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

publication date

9 May 2013

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

3

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

5

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

The COMET (Core Outcome Measures in Effectiveness Trials) Initiative: Its Role in Improving Cochrane Reviews

1 reference

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The OMERACT core set of outcome measures for use in clinical trials of ANCA-associated vasculitis.

1 reference

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Using the Delphi Technique to Determine Which Outcomes to Measure in Clinical Trials: Recommendations for the Future Based on a Systematic Review of Existing Studies

1 reference

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14 July 2018

European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects.

1 reference

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Four different patterns of fatigue in rheumatoid arthritis patients: results of a Q-sort study

1 reference

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Measuring fatigue in rheumatoid arthritis: a cross-sectional study to evaluate the Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional questionnaire, visual analog scales, and numerical rating scales.

1 reference

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Patient participation as dialogue: setting research agendas.

1 reference

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How to develop patient-centered research: some perspectives based on surveys among people with rheumatic diseases in Scandinavia.

1 reference

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Content and criterion validity of the preliminary core dataset for clinical trials in fibromyalgia syndrome

1 reference

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Fibromyalgia syndrome module at OMERACT 9: domain construct

1 reference

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1 reference

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14 July 2018

Patients as partners in responsive research: methodological notions for collaborations in mixed research teams.

1 reference

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Assessment of the benefits of user involvement in health research from the Warwick Diabetes Care Research User Group: a qualitative case study

1 reference

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14 July 2018

Fatigue as experienced by patients with rheumatoid arthritis (RA): a qualitative study

1 reference

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14 July 2018

User involvement, research and health inequalities: developing new directions

1 reference

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14 July 2018

Development of the effective musculoskeletal consumer scale.

1 reference

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14 July 2018

Consensus on a core set of domains for psoriatic arthritis

1 reference

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14 July 2018

Measuring fatigue in rheumatoid arthritis: a systematic review of scales in use.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3651970

14 July 2018

Outcomes in rheumatoid arthritis: incorporating the patient perspective

1 reference

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14 July 2018

Complexities in the quantitative assessment of patients with rheumatic diseases in clinical trials and clinical care.

1 reference

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14 July 2018

Standardized assessment of adverse events in rheumatology clinical trials: summary of the OMERACT 7 drug safety module update.

1 reference

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14 July 2018

Patients and clinicians have different perspectives on outcomes in arthritis

1 reference

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14 July 2018

Patient perspective in outcome assessments--perceptions or something more?

1 reference

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14 July 2018

Outcomes from the Patient Perspective Workshop at OMERACT 6.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3651970

14 July 2018

Minimal clinically important difference module: summary, recommendations, and research agenda.

1 reference

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Psychosocial measures

1 reference

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Psychosocial measures in musculoskeletal trials.

1 reference

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14 July 2018

The prevalence and meaning of fatigue in rheumatic disease.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3651970

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OMERACT conference on outcome measures in rheumatoid arthritis clinical trials: introduction

1 reference

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1 reference

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Factors which contribute to fatigue associated with rheumatoid arthritis

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3651970

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Patient and public involvement in patient-reported outcome measures: evolution not revolution.

1 reference

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Shared decision making: really putting patients at the centre of healthcare

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Patient Perspective on Remission in Rheumatoid Arthritis

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Finalisation and validation of the rheumatoid arthritis impact of disease score, a patient-derived composite measure of impact of rheumatoid arthritis: a EULAR initiative

1 reference

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A call for an international collaboration on participatory research for health.

1 reference

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Elaboration of the preliminary Rheumatoid Arthritis Impact of Disease (RAID) score: a EULAR initiative

1 reference

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A modified Delphi exercise to determine the extent of consensus with OMERACT outcome domains for studies of acute and chronic gout

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Standardising outcomes for clinical trials and systematic reviews

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OMERACT: an international initiative to improve outcome measurement in rheumatology

1 reference

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Course of patient-reported health outcomes in rheumatoid arthritis: comparison of longitudinal and cross-sectional approaches.

1 reference

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Patients' perceptions of fatigue in rheumatoid arthritis: overwhelming, uncontrollable, ignored

1 reference

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Rheumatology outcomes: the patient's perspective. A multicentre focus group interview study of Swedish rheumatoid arthritis patients.

1 reference

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Impact of fatigue on health-related quality of life in rheumatoid arthritis

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3651970

26 November 2018

Rheumatology outcomes: the patient's perspective

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3651970

26 November 2018

Measuring fatigue in rheumatoid arthritis

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Patients and professionals as research partners: Challenges, practicalities, and benefits

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The experiential knowledge of patients: a new resource for biomedical research?

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Lack of agreement between patients' and physicians' perspectives of rheumatoid arthritis disease activity changes

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Two important points

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Patient perspective: reasons and methods for measuring fatigue in rheumatoid arthritis

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

OMERACT 6 brings new perspectives to rheumatology measurement research

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The OMERACT filter for Outcome Measures in Rheumatology

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Fatigue in rheumatoid arthritis. Conditions, strategies, and consequences

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

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based on heuristic

inferred from PubMed ID database lookup

Patients as partners in a health research agenda setting: the feasibility of a participatory methodology

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

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based on heuristic

inferred from PubMed ID database lookup

Outcomes generated by patients with rheumatoid arthritis: how important are they?

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Fatigue in rheumatoid arthritis: time for a conceptual model

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The importance of patient participation in measuring rheumatoid arthritis flares

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Patient perspective: fatigue as a recommended patient centered outcome measure in rheumatoid arthritis

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

FDA guidance on patient reported outcomes

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Patients' perspective

1 reference

https://pubmed.ncbi.nlm.nih.gov/23667160

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1136/BMJOPEN-2012-002241

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

16 August 2017

ResearchGate publication ID

0 references

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