Patient reported outcomes and patient empowerment in clinical genetics services (Q38259348)

1 September 2017

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title

Patient reported outcomes and patient empowerment in clinical genetics services (English)

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1 September 2017

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25307491%20AND%20SRC:MED&resulttype=core&format=json

5 June 2020

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25307491%20AND%20SRC:MED&resulttype=core&format=json

5 June 2020

M McAllister

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1 September 2017

A Dearing

series ordinal

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1 September 2017

publication date

11 December 2014

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1 September 2017

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25307491%20AND%20SRC:MED&resulttype=core&format=json

5 June 2020

volume

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25307491%20AND%20SRC:MED&resulttype=core&format=json

5 June 2020

issue

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25307491%20AND%20SRC:MED&resulttype=core&format=json

5 June 2020

page(s)

114-121

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25307491%20AND%20SRC:MED&resulttype=core&format=json

Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations

5 June 2020

cites work

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Re-conceptualizing risk in genetic counseling: implications for clinical practice

21 January 2018

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Personal theories of inheritance, coping strategies, risk perception and engagement in hereditary non-polyposis colon cancer families offered genetic testing

21 January 2018

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Interventions to improve risk communication in clinical genetics: systematic review

21 January 2018

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Psychological impact of genetic testing for Huntington's disease: an update of the literature

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Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease.

21 January 2018

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Psychological studies in Huntington's disease: making up the balance

21 January 2018

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Adverse effects of predictive testing for Huntington disease underestimated: long-term effects 7-10 years after the test

21 January 2018

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Emotional distress following genetic testing for hereditary breast and ovarian cancer: a meta-analytic review

21 January 2018

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Distress among women receiving uninformative BRCA1/2 results: 12-month outcomes

21 January 2018

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Disclosure of APOE genotype for risk of Alzheimer's disease

21 January 2018

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Facilitating informed choice in prenatal testing: how well are we doing?

21 January 2018

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The effects of prenatal group genetic counselling on knowledge, anxiety and decisional conflict: issues for nuchal translucency screening

21 January 2018

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A randomized trial comparing alternative approaches to prenatal diagnosis counseling in advanced maternal age patients

21 January 2018

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Are pregnant Australian women well informed about prenatal genetic screening? A systematic investigation using the Multidimensional Measure of Informed Choice

21 January 2018

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Outcome measurement in clinical genetics services: a systematic review of validated measures.

21 January 2018

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The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study

21 January 2018

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Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist

21 January 2018

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Patient empowerment in clinical genetics services.

21 January 2018

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Empowerment: qualitative underpinning of a new clinical genetics-specific patient-reported outcome

21 January 2018

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The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services

21 January 2018

1 reference

Patient empowerment: the need to consider it as a measurable patient-reported outcome for chronic conditions

21 January 2018

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Barriers and facilitators for utilization of genetic counseling and risk assessment services in young female breast cancer survivors

21 January 2018

1 reference

Psychiatric genetic counselling for parents of individuals affected with psychotic disorders: a pilot study

21 January 2018

1 reference

Patient-reported disease knowledge and educational needs in Lynch syndrome: findings of an interactive multidisciplinary patient conference

21 January 2018

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100 years Lynch syndrome: what have we learned about psychosocial issues?

21 January 2018

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Effects of a mail and telephone intervention on breast health behaviors

21 January 2018

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Cognitive and psychological impact of BRCA genetic counseling in before and after definitive surgery breast cancer patients

21 January 2018

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Understanding the expectations of patients with inherited retinal dystrophies.

21 January 2018

1 reference

Caregiver and adult patient perspectives on the importance of a diagnosis of 22q11.2 deletion syndrome

21 January 2018

1 reference

A clinical perspective on genetic counseling and testing during end of life care for women with recurrent progressive ovarian cancer: opportunities and challenges.

21 January 2018

1 reference

"You're one of us now": young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP).

21 January 2018

1 reference

Parental perspective of the benefits of genetic testing in children with congenital deafness.

21 January 2018

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Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study

21 January 2018

1 reference

Effect of genetic counseling and testing for BRCA1 and BRCA2 mutations in African American women: a randomized trial.

21 January 2018

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The perceived and predicted implications of psychiatric genetic knowledge among persons with multiple cases of depression in the family

21 January 2018

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Non-invasive prenatal diagnosis for fetal sex determination: benefits and disadvantages from the service users' perspective

21 January 2018

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Reproductive empowerment: the main motivator and outcome of carrier testing

21 January 2018

1 reference

Uncertainty and perceived personal control among parents of children with rare chromosome conditions: the role of genetic counseling

21 January 2018

1 reference

Women's perceptions of the personal and family impact of genetic cancer risk assessment: focus group findings

21 January 2018

1 reference

"It was the missing piece": adolescent experiences of predictive genetic testing for adult-onset conditions

21 January 2018

1 reference

Black and White adults' perspectives on the genetics of nicotine addiction susceptibility

21 January 2018

1 reference

Longer-term influence of breast cancer genetic counseling on cognitions and distress: smaller benefits for affected versus unaffected women

21 January 2018

1 reference

Factors affecting the clinical use of non-invasive prenatal testing: a mixed methods systematic review

21 January 2018

1 reference

A legacy for the children--attitudes of older adults in the United Kingdom to genetic testing.

21 January 2018

1 reference

Effectiveness of testing for genetic susceptibility to smoking-related diseases on smoking cessation outcomes: a systematic review and meta-analysis

21 January 2018

1 reference

Ethical controversies in prenatal microarray

21 January 2018

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Parental preferences for CDKN2A/p16 testing of minors

21 January 2018

1 reference

Personal factors associated with reported benefits of Huntington disease family history or genetic testing

21 January 2018

1 reference

Effect of genetic testing for risk of type 2 diabetes mellitus on health behaviors and outcomes: study rationale, development and design

21 January 2018

1 reference

Effects of communicating DNA-based disease risk estimates on risk-reducing behaviours

21 January 2018

1 reference

Cancer genetic risk assessment for individuals at risk of familial breast cancer

21 January 2018

1 reference

Cluster randomized controlled trial of a psycho-educational intervention for people with a family history of depression for use in general practice

21 January 2018

1 reference

Effect of adding systematic family history enquiry to cardiovascular disease risk assessment in primary care: a matched-pair, cluster randomized trial

21 January 2018

1 reference

Antenatal screening for haemoglobinopathies in primary care: a cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial

21 January 2018

1 reference

Valuing the benefits of genetic testing for retinitis pigmentosa: a pilot application of the contingent valuation method

21 January 2018

1 reference

Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients’ views

21 January 2018

1 reference

The Revised Illness Perception Questionnaire (IPQ-R)

21 January 2018

1 reference

21 January 2018

Identifiers

DOI

10.1111/CGE.12520

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25307491%20AND%20SRC:MED&resulttype=core&format=json

5 June 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:25307491%20AND%20SRC:MED&resulttype=core&format=json