Measuring quality of life in pediatric palliative care: challenges and potential solutions (Q37260755)

19 August 2017

Measuring quality of life in pediatric palliative care: challenges and potential solutions (English)

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pediatric palliative care

19 August 2017

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I-Chan Huang

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19 August 2017

Elizabeth A Shenkman

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19 August 2017

Vanessa L Madden

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19 August 2017

Susan Vadaparampil

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19 August 2017

Gwendolyn Quinn

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19 August 2017

Caprice A Knapp

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19 August 2017

10 December 2009

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19 August 2017

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19 August 2017

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19 August 2017

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19 August 2017

175-182

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The linkage between pediatric quality of life and health conditions: establishing clinically meaningful cutoff scores for the PedsQL

19 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Agreement was not found in adolescents' quality of life rated by parents and adolescents

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Parenting children requiring complex care: a journey through time

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Psychosocial and spiritual needs of children living with a life-limiting illness

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

A framework for integrated pediatric palliative care: being with dying

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Profile of medical charges for children by health status group and severity level in a Washington State Health Plan

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Item response theory and health outcomes measurement in the 21st century

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Annual summary of vital statistics: 2004.

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

The needs of children with life-limiting conditions: a healthcare-provider-based model

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Mothers of children and adolescents with intellectual disability: social and economic situation, mental health status, and the self-assessed social and psychological impact of the child's difficulties

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

The PedsQL: measurement model for the pediatric quality of life inventory

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Underreporting by cancer patients: the case of response-shift.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Life threatening illness and hospice care

3 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1177%2F0269216309352418

Palliative Care for Children

21 January 2018

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Crossref

https://api.crossref.org/works/10.1177%2F0269216309352418

American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3810279

Pediatric palliative care

3 December 2018

1 reference

12 December 2020

The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life

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12 December 2020

Partners in care: together for kids: Florida's model of pediatric palliative care

1 reference

12 December 2020

A theory-based method for the evaluation of individual quality of life: the SEIQoL

1 reference

12 December 2020

The dying child: how is care different?

1 reference

12 December 2020

Identifiers

DOI

10.1177/0269216309352418

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19 August 2017

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19 August 2017

PubMed publication ID

20007819

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