(Q30234720)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

1 reference

Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

0 references

1 reference

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

V Blanchette

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

C B Terwee

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

V E Price

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

S C Gouw

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

M Peters

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

M A Grootenhuis

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

L Haverman

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

publication date

21 April 2017

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

volume

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

issue

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

page(s)

497-510

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

The hemophilias--from royal genes to gene therapy

18 March 2020

cites work

1 reference

Outcome measures in haemophilia: a systematic review.

21 January 2018

1 reference

Quality of life and sports activities in patients with haemophilia

21 January 2018

1 reference

Predictors of health-related quality of life in children and adolescents with juvenile idiopathic arthritis: results from a Web-based survey

21 January 2018

1 reference

Evaluating outcome of prophylaxis in haemophilia: objective and self-reported instruments should be combined

21 January 2018

1 reference

Assessments of outcome in haemophilia - what is the added value of QoL tools?

21 January 2018

1 reference

Quality of life assessment in clinical practice in haemophilia treatment.

21 January 2018

1 reference

21 January 2018

1 reference

Paediatric health-related quality of life: what is it and why should we measure it?

21 January 2018

1 reference

Pediatric health-related quality of life questionnaires in clinical trials

21 January 2018

1 reference

Minimum skills required by children to complete health-related quality of life instruments for asthma: comparison of measurement properties

21 January 2018

1 reference

Evidence that school-age children can self-report on their health

21 January 2018

1 reference

Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL).

21 January 2018

1 reference

Development of a health-related quality of life measure for boys with haemophilia: the Canadian Haemophilia Outcomes--Kids Life Assessment Tool (CHO-KLAT).

21 January 2018

1 reference

Development of a new disease-specific quality-of-life questionnaire to adults living with haemophilia

21 January 2018

1 reference

Disease-specific quality-of-life measurement tools for haemophilia patients.

21 January 2018

1 reference

The MOS 36-ltem Short-Form Health Survey (SF-36)

21 January 2018

1 reference

The PedsQL™* 4.0 as a Pediatric Population Health Measure: Feasibility, Reliability, and Validity

21 January 2018

1 reference

21 January 2018

1 reference

Evaluation of the methodological quality of systematic reviews of health status measurement instruments

21 January 2018

1 reference

Clinimetric instruments to assess functional health status in patients with haemophilia: a literature review

21 January 2018

1 reference

Psychosocial aspects of haemophilia: a systematic review of methodologies and findings

21 January 2018

1 reference

Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist

21 January 2018

1 reference

The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study

21 January 2018

1 reference

Development of a methodological PubMed search filter for finding studies on measurement properties of measurement instruments

21 January 2018

1 reference

Quality criteria were proposed for measurement properties of health status questionnaires

21 January 2018

1 reference

The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes

21 January 2018

1 reference

GRADE: an emerging consensus on rating quality of evidence and strength of recommendations

21 January 2018

1 reference

Comparing two measures of quality of life for children with haemophilia: the CHO-KLAT and the Haemo-QoL.

21 January 2018

1 reference

How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?

21 January 2018

1 reference

Updating the Canadian hemophilia outcomes-kids life assessment tool (CHO-KLAT Version2.0).

21 January 2018

1 reference

Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China

21 January 2018

1 reference

International cross-cultural validation study of the Canadian haemophilia outcomes: kids' life assessment tool

21 January 2018

1 reference

Cross-cultural validation of the CHO-KLAT and HAEMO-QoL-A in Canadian French

21 January 2018

1 reference

Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries

21 January 2018

1 reference

Assessment of the impact of treatment on quality of life of patients with haemophilia A at different ages: insights from two clinical trials on turoctocog alfa

21 January 2018

1 reference

The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia

21 January 2018

1 reference

Hemophilia-Specific Quality of Life Index (Haemo-QoL and Haem-A-QoL questionnaires) of children and adults: result of a single center from Turkey

21 January 2018

1 reference

Development and validation of a measure of disease-specific quality of life in young children with haemophilia

21 January 2018

1 reference

Psychometric field study of the new haemophilia quality of life questionnaire for adults: the 'Hemofilia-QoL'.

21 January 2018

1 reference

Development and psychometric testing of the Hemophilia Well-being Index.

21 January 2018

1 reference

Cross-cultural development and psychometric evaluation of a patient-reported health-related quality of life questionnaire for adults with haemophilia

21 January 2018

1 reference

Psychometric properties of the Greek Haem-A-QoL for measuring quality of life in Greek haemophilia patients.

21 January 2018

1 reference

Changes in health-related quality of life with treatment of longer-acting clotting factors: results in the A-LONG and B-LONG clinical studies

21 January 2018

1 reference

Interpreting important health-related quality of life change using the Haem-A-QoL.

21 January 2018

1 reference

21 January 2018

1 reference

Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review

21 January 2018

1 reference

Conceptual and methodological advances in child-reported outcomes measurement

21 January 2018

1 reference

Quality of life in haemophilia

21 January 2018

1 reference

Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation

21 January 2018

1 reference

Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the hemophilia joint health score

21 January 2018

1 reference

Efficiency of static and computer adaptive short forms compared to full-length measures of depressive symptoms

21 January 2018

1 reference

The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative

21 January 2018

1 reference

2009 updated method guidelines for systematic reviews in the Cochrane Back Review Group

21 January 2018

1 reference

Process and experience of cross-cultural adaptation of a quality of life measure (CHO-KLAT) for boys with haemophilia in Brazil.

21 January 2018

1 reference

Validation of the Chinese version of the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (the CHO-KLAT).

21 January 2018

1 reference

Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents

21 January 2018

1 reference

21 January 2018

Identifiers

DOI

10.1111/HAE.13197

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json

18 March 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:28429867%20AND%20SRC:MED&resulttype=core&format=json